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  • Debilitating neurological disorder that mainly affects females.
  • The leading cause of severe impairment in girls - most cannot speak, walk or use their hands.
  • As prevalent as Cystic Fibrosis, ALS, and Huntington's
  • Babies are born "normal" but begin to lose acquired skills between the ages of 1-3 years old. 
  • Symptoms may include: sleep problems, teeth grinding, difficulty chewing and swallowing, breathing difficulties, apnea, seizures, scoliosis, and heart abnormalities.

What is

Rett Syndrome?



We would like to invite you to be a part of our 3rd Annual Racing For Rett event and support a cause we are all extremely passionate about! 


You will have a chance to meet several girls who suffer with Rett Syndrome on a daily basis.


Our family is excited to see everyone for the 3rd Annual Racing For Rett on June 3, 2017 at the Harrisonville City Park in Harrisonville, MO.